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erinpaterson55
- Nov 12, 2021
- 3 min
The Emotional Aftermath of Genetic Testing
An Excerpt from All Good Things: A Memoir About Genetic Testing, Infertility and One Woman’s Relentless Search for Happiness I had...
49
James Valvano
- Nov 1, 2021
- 2 min
Huntington's Disease Community Speaks + HD Organizations Act = Neurology® Editorial Staff Firewall
If you were to ask any HD patient or caregiver if chorea was their number one concern with Huntington's disease, you would quickly learn...
421
Kevin Jess
- Jun 15, 2021
- 3 min
Butterfly Kisses: A Huntington's Disease Story
I remember the little kisses on the cheek that my girls would give me when tucking them in at night. They were light and made a slightly...
474
Jen Almeida
- May 12, 2021
- 3 min
Why me?
To me it is not a question of if there is a Higher Power (God)? It’s if there is a Higher Power (God) then -why me? I didn’t grow up...
45
Jen Almeida
- May 12, 2021
- 2 min
Traveling with HD
I love to travel. I love to go on planes and sit next to the window and see what Mother Nature gave us. In the past, my husband and I...
27
Kevin Jess
- May 10, 2021
- 2 min
New clinical trial to slow progression of Huntington's Disease scheduled for 2022
To say that it has been a disappointing year for us in the Huntington's Disease community would be a huge understatement. However, I...
470
James Valvano
- Mar 22, 2021
- 3 min
Community voices for changes in Huntington's disease
The Huntington's disease community must fix what is not working properly for us. Most importantly, it is time that patients and families...
992
Kevin Jess
- Mar 3, 2021
- 1 min
Niagara Falls to light it up blue and purple - WeHaveAFace Canada
Every year WeHaveAFace Canada arranges for Niagara Falls to be lit up blue and purple for Huntington's Disease awareness month in May....
520
Kevin Jess
- Jan 6, 2021
- 2 min
Massachusetts General Hospital offers nutritional tips for Huntington's Disease
Any caregiver knows that a major conundrum they face when caring for someone with Huntington's Disease or Juvenile Huntington's Disease...
310
James Valvano
- Nov 30, 2020
- 5 min
Huntington's Disease Diagnostic Criteria Needs Updating!
Looking back over the years, I can honestly say that much has evolved pertaining to education, information, and resources for...
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