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Jen Almeida
- May 12, 2021
- 2 min
Traveling with HD
I love to travel. I love to go on planes and sit next to the window and see what Mother Nature gave us. In the past, my husband and I...
27
Kevin Jess
- May 10, 2021
- 2 min
New clinical trial to slow progression of Huntington's Disease scheduled for 2022
To say that it has been a disappointing year for us in the Huntington's Disease community would be a huge understatement. However, I...
465
James Valvano
- Mar 22, 2021
- 3 min
Community voices for changes in Huntington's disease
The Huntington's disease community must fix what is not working properly for us. Most importantly, it is time that patients and families...
991
Kevin Jess
- Mar 3, 2021
- 1 min
Niagara Falls to light it up blue and purple - WeHaveAFace Canada
Every year WeHaveAFace Canada arranges for Niagara Falls to be lit up blue and purple for Huntington's Disease awareness month in May....
518
Kevin Jess
- Jan 6, 2021
- 2 min
Massachusetts General Hospital offers nutritional tips for Huntington's Disease
Any caregiver knows that a major conundrum they face when caring for someone with Huntington's Disease or Juvenile Huntington's Disease...
306
James Valvano
- Nov 30, 2020
- 5 min
Huntington's Disease Diagnostic Criteria Needs Updating!
Looking back over the years, I can honestly say that much has evolved pertaining to education, information, and resources for...
848
Deb Johnston
- Sep 12, 2020
- 2 min
Sound Familiar? Talking about Corticobasal Degeneration.
I wanted to share with you all a disease that I was introduced to earlier this year. Being in healthcare I have seen a lot of patients...
41
Kevin Jess
- Aug 28, 2020
- 3 min
I watched an elderly woman cry
I went to see my wife Sheila the other day at the long term care facility. She is in her 25th year of Huntington's Disease. It's a...
189
James Valvano
- Aug 25, 2020
- 3 min
A non-pharmacological approach for Huntington's disease. Why not?
For many years, the community has relied on a pharmacological approach to manage manifestations of Huntington's and Juvenile Huntington's...
442
Kevin Jess
- Aug 18, 2020
- 2 min
WeHaveAFace Canada, Nova Scotia Chapter, begins major fundraiser
Charities have been, like everyone else, hit very hard by the Covid-19 pandemic, and WeHaveAFace Canada is no exception. Known for our...
70
