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Kevin Jess
- Apr 26, 2022
- 3 min
Invisible: A Huntington's Disease Story
On a recent shopping stop at the local grocery store, an old neighbour stopped to chat. It was basic small talk; the usual stuff, the...
273
darren1153
- Apr 21, 2022
- 4 min
It sure does take it out of you
We are 16 months into the journey post diagnosis. Julie is living with Huntington's disease but it doesn't define her. She is not afraid...
53
darren1153
- Apr 14, 2022
- 2 min
We Have a Face - Aotearoa
Tena Koutou Tena Koutou Tena Koutou kotoa. Greetings greetings greetings to all from what some might seem is the furthest or remotest...
35
Kevin Jess
- Mar 12, 2022
- 2 min
Huntington's Disease, Grey matter and Covid-19
Huntington's Disease patients, as well as their families continue to wait. They wait for a cure, but, they also happen to be realistic,...
143
Kevin Jess
- Mar 5, 2022
- 4 min
Single test for over 50 genetic diseases will cut diagnosis from decades to days
Garvan researchers have shown how new genomic sequencing technology can reduce the 'diagnostic odyssey' experienced by people with rare...
74
Kevin Jess
- Feb 28, 2022
- 1 min
Niagara Falls, Canada to Light it up blue and purple for Huntington's Disease May, 2022
May is an important month for those in the Huntington's Disease community. It is a time to create awareness of one of the most cruel...
92
James Valvano
- Feb 22, 2022
- 4 min
SAGE Therapeutics Addresses the Huntington's Disease Community
Community Statement from Sage Therapeutics on HD Clinical Trial Program 215 First Street, Cambridge, MA 02142 www.sagerx.com February...
160
Kevin Jess
- Nov 17, 2021
- 2 min
Prilenia receives fast track designation for Pridopidine for the treatment of Huntington's Disease
17 November | 2021 Prilenia Receives Fast Track Designation for Pridopidine for the Treatment of Huntington’s Disease Fast Track...
136
erinpaterson55
- Nov 12, 2021
- 3 min
The Emotional Aftermath of Genetic Testing
An Excerpt from All Good Things: A Memoir About Genetic Testing, Infertility and One Woman’s Relentless Search for Happiness I had...
49
James Valvano
- Nov 1, 2021
- 2 min
Huntington's Disease Community Speaks + HD Organizations Act = Neurology® Editorial Staff Firewall
If you were to ask any HD patient or caregiver if chorea was their number one concern with Huntington's disease, you would quickly learn...
421
