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Kevin Jess
- Aug 11, 2022
- 3 min
Sage Therapeutics issues positive update on Surveyor Study
An August letter to the Huntington's Disease Community from Sage Therapeutics regarding the Surveyor Study is welcome news considering the d
125
Jen Almeida
- Aug 5, 2022
- 2 min
Why am I so sad....
An empathetic person, like myself, has the ability to step into the shoes of another person, aiming to understand their feelings and...
58
Jen Almeida
- Aug 3, 2022
- 3 min
I'm NOT lazy.....
I was driving home today and was feeling good. I was jamming out to my 90's R&B and singing like no one was listening. Then of course,...
182
darren1153
- Jul 2, 2022
- 5 min
Who is your #1 ?
Kia ora and greetings from Aotearoa New Zealand. Much has changed since I last wrote and I am not hoping to capture it all at once. The...
39
Kevin Jess
- Jun 5, 2022
- 3 min
A Wee Bit Angry: A Huntington's Disease Story
Whether you are a person with Huntington's Disease, a caregiver, family member, friend or acquaintance, we all have our stories; stories...
140
darren1153
- Jun 2, 2022
- 1 min
Caring for yourself
Here is a little reflection on caring for yourself so that you an care for some you love who is living and journeying with Huntingtons...
31
darren1153
- May 17, 2022
- 1 min
Huntington's Disease Take No Prisoners
Tēnā koe e hoa (Greetings, Hello to you friend) Heemi (AKA as Darren) from Aotearoa. Instead of writing cause my mind has been a bit...
99
Jen Almeida
- May 14, 2022
- 2 min
When Change Happens
What is change? Well, if your ask our good friend Google it will tell you: · (Noun) the act or instance of making or becoming...
105
Kevin Jess
- Apr 26, 2022
- 3 min
Invisible: A Huntington's Disease Story
On a recent shopping stop at the local grocery store, an old neighbour stopped to chat. It was basic small talk; the usual stuff, the...
270
darren1153
- Apr 21, 2022
- 4 min
It sure does take it out of you
We are 16 months into the journey post diagnosis. Julie is living with Huntington's disease but it doesn't define her. She is not afraid...
52
