As many of you are aware, I am the creator of several Facebook Groups to support our HD/JHD community.
I started with WeHaveAFace as a Regional Advocate for Connecticut and worked my way up to Director of Communications.
I was honored and accepted the position which allows me to continue to work with my Facebook Groups.
In addition, it also allows me to follow my dream to create a vital program within WeHaveAFace: 1-on-1 Peer Support Services. This new program will facilitate phone calls, virtual video calls, and even text message supports.
I am available for people with HD, their caregivers, and their families. It is important to have a safe place to talk with a community member who seeks education, information, and resources.
Here are some examples of discussions we can have:
Wanting to vent, yell, talk or cry
Discuss genetic testing
Caregiving for someone with HD/JHD
Asking HD related questions
Help setting up Power of Attorneys or End of Life documents
Help getting in touch with a Center of Excellence
Discussing difficult topics: sex, abuse, suicidal ideation, etc.
Is this a symptom of HD or not
What you need to know:
I am not a licensed therapist or social worker
I am not a doctor or a nurse
I am doing this because I have a passion to help people in the HD community
I have 20+ years experience with Huntington's disease
The call will be private and confidential
Participants must be 18+ years old
WeHaveAFace.org is an unpaid, public, non-profit charity.Jennifer Almeida (Director of Communications for WeHaveAFace.org), works as a volunteer to provide/share public and private education, resources, and information intended, but not promised or guaranteed, to be correct, complete, and up to date. However, the material and information provided on the call, including all comments and responses to comments, do not constitute legal or professional advice. The caller should not consider this information to constitute legal advice or medical advice of a professional, and should not rely on information provided herein and should always seek the advice/help of a competent counselor or doctor in the caller(s) state or jurisdiction. WeHaveAFace and Jennifer Almeida do not intend for links on the website to be referrals or endorsements of the linked entities. All information provided via links are vetted by HD/JHD doctors/medical facilities, and are not created/authored by WeHaveAFace.org; these avenues of resources are the responsibility of said medical professionals/medical facilities to update the information they list as resources across the internet. Jen Almeida must report any/all participants to any/all authorities if the participant(s) life and/or the life of household parties/participants is in danger in any way. Any participant(s) found to abuse Jen Almeida, her phone number, and/or any support provided or discussed, will be blocked, removed, reported to authorities, and removed from any/all Facebook page(s).
Director of Communications
Make an appointment
Hours: 9 AM - 9 PM EST (Weekly)
Appointments can also be made by emailing:
Thank you in advance for your support, and I truly look forward to helping anyone in need.