The Huntington's Bookshelf!
WeHaveAFace.org wishes to highlight and recommend the following books related to Huntington's disease.
*Disclaimer: Please get with the author and/or organization for details about your purchase and its financial allocation.
Me and HD
I have Huntington's disease, a wretched, neurodegenerative disease that is slowly diminishing my ability to think, speak and move. My book is a window into some of the ways HD has impacted my life and my family's lives. Even if you don't know anything about HD, I think you'll find this book to be compelling and thought-provoking.
Hurry Up and Wait
To those it touches and their carers, Huntington's Disease presents an ongoing series of challenges to accommodate its changes in thinking. "Hurry up and Wait!" is a set of exercises to simulate the cognitive difficulties faced by those with HD, a collection of tips to accommodate them in your home or care home, a strategy to develop new approaches to solving care problems and commentary on common problems faced by family carers and those they love.
The Woman Who Walked into the Sea:Huntington's and the Making of a Genetic Disease
When Phebe Hedges, a woman in East Hampton, New York, walked into the sea in 1806, she made visible the historical experience of a family affected by the dreaded disorder of movement, mind, and mood her neighbors called St.Vitus's dance. Doctors later spoke of Huntington’s chorea, and today it is known as Huntington's disease. This book is the first history of Huntington’s in America.
Rules for 50/50 Chances: A Novel
Seventeen-year-old Rose Levenson has a decision to make: Does she want to know how she's going to die? Because when Rose turns eighteen, she can take the test that tells her if she carries the genetic mutation for Huntington's disease, the degenerative condition that is slowly killing her mother.
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The Prayer of a Lifetime
Seventeen-year-old Rose Levenson has a decision to make: Does she want to know how she's going to die? Because when Rose turns eighteen, she can take the test that tells her if she carries the genetic mutation for Huntington's disease, the degenerative condition that is slowly killing her mother.
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North and Central
Andy's a bartender in Chicago's North Austin neighborhood in the late 1970s. For years, he's been slinging beers to corrupt cops and fat Zenith employees, but given the West Side's ongoing decline (and his own serious health issues), he's starting to wonder how long it can go on. He's serving workers from a dying factory in a dying neighborhood; he sees crime on the rise--and he decides to become a criminal himself.