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James Valvano
- Jan 27, 2018
- 1 min
"The Purple Road" will be traveled
On January 17, 2018, WeHaveAFace.org announced (via Facebook LIVE) the completion of "The Purple Road" Juvenile Huntington's disease...
4
James Valvano
- Jan 27, 2018
- 2 min
uniQure: AMT-130 AAV-gene therapy for Huntington's disease
uniQure, a leading gene therapy company advancing transformative therapies for patients with severe medical needs, today in a press...
11
James Valvano
- Jan 24, 2018
- 3 min
A Mother's Love and Pain
I recently went through the loss of my brother-in-law, and as I attended the celebration of his life, I watched his mother, a mother of...
6
James Valvano
- Jan 24, 2018
- 2 min
When is it time to test for Huntington's disease?
For most people, getting a test result for Huntington's Disease is something that is given you in person. It is not something to be taken...
3
Leanne Delong
- Jan 23, 2018
- 2 min
uniQure: AMT-130 AAV-gene therapy for Huntington's disease
uniQure, a leading gene therapy company advancing transformative therapies for patients with severe medical needs, today in a press...
102
Leanne Delong
- Jan 18, 2018
- 1 min
MMJ Biosciences: Will we see a pharmaceutical cannabinoid compound for HD?
According to a recent press release, MMJ International Holdings has filed a patent "that relates to pharmaceutical compounds and methods...
25
Leanne Delong
- Jan 14, 2018
- 4 min
The Seasons of Huntington's Disease
Where I come from in Nova Scotia, Canada there are four very distinct seasons. They are abrupt and seldom do they gradually blend into...
49
Leanne Delong
- Jan 4, 2018
- 2 min
Study shows strict meal times may improve quality of life with HD
As caregivers to a person or a loved one with Huntington's Disease or Juvenile Huntington's Disease the concern of calorie intake seems...
66
Cindy Moore
- Dec 30, 2017
- 3 min
Hope vs. Death
I thought I would begin by telling you a true story and what inspires me. I worked in a very highly stressful job. Many people depended...
39
James Valvnao
- Dec 29, 2017
- 3 min
WeHaveAFace: Mexico
Full disclosure: It was never in our mission to expand outside of the United States. However, in our travels over the course of two...
41
