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Leanne Delong
- Mar 22, 2018
Privacy in the Huntington's community amid Facebook data woes
For many of us in the Huntington's Disease community, privacy is a huge concern. While many of us, including myself, post freely on...
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James Valvano
- Mar 14, 2018
"The Purple Road" continues to build momentum!
UPDATED! In 2017, WeHaveAFace traveled to different parts of the globe to give our Juvenile Huntington's disease peers and families a...
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Leanne Delong
- Mar 13, 2018
Gene silencer may be a smart bomb!
In a recent conversation with Dr. Herwig Lange of the George Huntington Institute in Munster, Germany, I was casually asked what my...
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Ginnievive Patch
- Mar 12, 2018
Caregiver Burnout!
A common theme in online support groups is caregivers feeling overwhelmed. Many admit to constant crying, feeling lonely and feeling...
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Leanne Delong
- Mar 12, 2018
Niagara Falls lights up each year for Huntington's Disease
For one day a year, the colours blue and purple boast more than their beautiful colour, they broadcast awareness, across Niagara Falls....
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