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Kevin Jess
- Mar 12, 2022
Huntington's Disease, Grey matter and Covid-19
Huntington's Disease patients, as well as their families continue to wait. They wait for a cure, but, they also happen to be realistic,...
145 views
James Valvano
- Apr 20, 2018
Roche and AAN Huntington's Community Statement
I wish to thank Mai-Lise Nguyen (Patient Partnership and Advocacy - Roche, Switzerland), for reaching out to us at WeHaveAFace with the...
154 views
Leanne Delong
- Apr 4, 2018
Medical Research: A Big Winner In $1.3 Trillion Federal Budget
Despite threats to cut funding to medical research, the U.S. Congress passed a whopping 1.3 trillion dollar budget and although it was...
41 views
Leanne Delong
- Mar 13, 2018
Gene silencer may be a smart bomb!
In a recent conversation with Dr. Herwig Lange of the George Huntington Institute in Munster, Germany, I was casually asked what my...
69 views
James Valvano
- Mar 9, 2018
IONIS Press Release Causes More Questions and Concerns
I've stayed silent...very silent, since the press release on March 1, 2018, from Ionis Pharmaceuticals, Inc.: "IONIS-HTT Rx (RG6042)...
288 views
Leanne Delong
- Jan 23, 2018
uniQure: AMT-130 AAV-gene therapy for Huntington's disease
uniQure, a leading gene therapy company advancing transformative therapies for patients with severe medical needs, today in a press...
103 views