Search
James Valvano
- Feb 21, 2018
Advocacy: The bittersweet double-edged sword of a nonprofit run by patients and caregivers.
A bed of roses...but there were thorns. Before this monster entered my life, the stage was set, but the red-velvet curtains remained...
80 views
Leanne Delong
- Feb 20, 2018
When quality of life locks horns with sanctity of life
Deciding whether or not to place a Do Not Resuscitate (DNR) order on our loved ones is a common struggle that people in the Huntington's...
47 views
James Valvnao
- Feb 7, 2018
La experiencia mexicana: primera parte
Mi promesa a la comunidad de Huntington en México comenzó en 2009. En ese momento, mi misión estaba en su infancia. Decidí producir el...
20 views
James Valvnao
- Feb 7, 2018
The Mexican Experience: Part One
My promise to our Huntington's community in Mexico began in 2009. At that point in time, my mission was in its infancy. I decided to...
47 views
Leanne Delong
- Feb 6, 2018
Understanding the motivation of a Huntington's Disease Advocate
I never pictured myself as an advocate for anything. I'm not politically motivated, nor am I active in politics. I was never one to...
67 views