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James Valvano
- Mar 29, 2018
WeHaveAFace México: Esperanza para la enfermedad de Huntington
WeHaveAFace pasó la primera semana de febrero de 2018 en la Ciudad de México. Daniel Medina es el gerente de proyectos para México y...
123 views
Candice Neblett
- Mar 28, 2018
Suicide and Depression: Why thoughts and prayers don’t work in this social media dominated society.
It’s been years since I went to a clinical therapist or psychiatrist so forgive my self-diagnosis of clinical depression. Also, I do not...
102 views
Ginnievive Patch
- Mar 25, 2018
Nursing Home or not to Nursing Home, THAT is the question!
Many Huntington’s and Juvenile Huntington’s disease families are faced with the possibility of moving their loved one into a facility....
15 views
Leanne Delong
- Mar 22, 2018
Privacy in the Huntington's community amid Facebook data woes
For many of us in the Huntington's Disease community, privacy is a huge concern. While many of us, including myself, post freely on...
80 views
Ginnievive Patch
- Mar 12, 2018
Caregiver Burnout!
A common theme in online support groups is caregivers feeling overwhelmed. Many admit to constant crying, feeling lonely and feeling...
72 views
Leanne Delong
- Mar 12, 2018
Niagara Falls lights up each year for Huntington's Disease
For one day a year, the colours blue and purple boast more than their beautiful colour, they broadcast awareness, across Niagara Falls....
98 views